An increasingly large body of##pidorpidor## research is emerging that supports the expectation##pidorpidor## that people experience better outcomes when they have##pidorpidor## choice, control and flexible tailored supports.##pidorpidor## ##pidorpidor## The following is a list of articles from both##pidorpidor## Australia and Overseas:
##pidorpidor## ##pidorpidor## Research articles:
##pidorpidor## ##pidorpidor## Stancliffe RJ & Keane S (2000). Outcomes and##pidorpidor## costs of community living: A matched comparison of##pidorpidor## group homes and semi-independent living. Journal of##pidorpidor## Intellectual and Developmental Disability, 25(4),##pidorpidor## pp. 281-305.
##pidorpidor## ##pidorpidor## This study compared outcomes for people##pidorpidor## with comparable profiles in the low to moderate##pidorpidor## support needs range. It was found that where##pidorpidor## differences were significant, on five indicators,##pidorpidor## participants in semi-independent community living##pidorpidor## had significantly better outcomes than participants##pidorpidor## in group homes. This finding was deemed consistent##pidorpidor## with previous research findings cited which report##pidorpidor## superior outcomes in semi-independent settings.##pidorpidor## People living in the community had lower social##pidorpidor## dissatisfaction, more independent use of community##pidorpidor## facilities and more empowerment.
##pidorpidor## ##pidorpidor## Kappell B (1995). Making##pidorpidor## the Impossible Possible: Reflections on Individualized##pidorpidor## Approaches With a Focus on Ontario. Journal of##pidorpidor## Leisurability, 22(4).
##pidorpidor## ##pidorpidor## This provides a discussion of lessons##pidorpidor## learned after 20 years of advocacy for and##pidorpidor## initiatives in individualised support in Ontario,##pidorpidor## Canada. Kappell argues that after "ongoing##pidorpidor## attempts, reviews, research, and policy##pidorpidor## development, the idea of what 'individualized##pidorpidor## approaches' is all about is becoming clear" and##pidorpidor## concludes, "Individualized approaches should lead##pidorpidor## to the following outcomes: having a physical##pidorpidor## presence in the community; being involved with##pidorpidor## community activities/groups; having personal##pidorpidor## relationships and friendships; learning &##pidorpidor## developing skills and abilities; making decisions##pidorpidor## and taking control of one's own life; being##pidorpidor## respected and having a good reputation." He then##pidorpidor## identifies some trends and issues that arise from##pidorpidor## the last fifteen years' experience in Ontario.
##pidorpidor## ##pidorpidor## Lucyshyn J, Olson D & Horner RH (1995).##pidorpidor## Building an ecology of support: A case study of one##pidorpidor## young woman with severe problem behaviors living in##pidorpidor## the community. Journal of the Association for##pidorpidor## Persons with Severe Handicaps (JASH), 20(1), pp.##pidorpidor## 16-30.
##pidorpidor## ##pidorpidor## This study used quantitative and##pidorpidor## qualitative measures to evaluate the outcomes for a##pidorpidor## young woman with life-threatening self-injurious##pidorpidor## behaviours before and after her move from an##pidorpidor## institution into community living. Authors note##pidorpidor## that challenging behaviours are the most common##pidorpidor## reason for people being placed in institutional##pidorpidor## living arrangements, and say there is a common##pidorpidor## presumption that the problem behaviours need to##pidorpidor## improve before community living is viable. However,##pidorpidor## the study found that outcomes for this young woman##pidorpidor## were significantly improved after the move. After##pidorpidor## the move 'substantial improvements in Emma's##pidorpidor## behavior, community participation and social##pidorpidor## relationships' were observed and after 2½##pidorpidor## years of community living Emma was 'more alert,##pidorpidor## verbally assertive, conversational and##pidorpidor## affectionate
more independent, socially##pidorpidor## competent and happy.' She was not 'cured' of##pidorpidor## challenging behaviours, but these significantly##pidorpidor## reduced at times when staff was stable and knew her##pidorpidor## well, and they increased at times of major##pidorpidor## disruption to staffing patterns, indicating that##pidorpidor## the behaviours were 'contextually bound'. Authors##pidorpidor## note: "Her problem behaviors may require continual##pidorpidor## adjustment of the type and quality of support she##pidorpidor## receives but not the elimination of her opportunity##pidorpidor## to work, play and learn in the community."
##pidorpidor## ##pidorpidor## Gruhn R (2005). Everybody##pidorpidor## Needs a Home. People from a non-English speaking##pidorpidor## background with disability and their families living##pidorpidor## in communities - a research project about their##pidorpidor## concerns and hopes and their implications for public##pidorpidor## policy, Multicultural##pidorpidor## Disability Advocacy Association of NSW
##pidorpidor## ##pidorpidor## This paper documents the hopes and##pidorpidor## concerns of people in NSW from a non-English##pidorpidor## speaking background (NESB) with disability and##pidorpidor## their families about their accommodation and more##pidorpidor## broadly the circumstances in which they live. 53##pidorpidor## people were interviewed about what they most##pidorpidor## wanted. The report concludes, "What participants##pidorpidor## reported about their current accommodation##pidorpidor## confirmed the need to change the way support for##pidorpidor## living in the community is currently provided. As##pidorpidor## we explore later, the challenge for providers and##pidorpidor## funders of support programs such as supported##pidorpidor## accommodation is to create systems that strengthen##pidorpidor## meaningful relationships and networks which form##pidorpidor## the foundations for community support within local##pidorpidor## communities.
##pidorpidor## ##pidorpidor## Berkman K & Meyers L (1988). Alternative##pidorpidor## Strategies and Multiple Outcomes in the Remediation of##pidorpidor## Severe Self-Injury: Going "All Out" Nonaversively.##pidorpidor## Journal of the Association for Persons with Severe##pidorpidor## Handicaps (JASH), 3(2), pp. 76-86.
##pidorpidor## ##pidorpidor## The case study describes various##pidorpidor## treatments implemented over a three-year period to##pidorpidor## reduce and eliminate multiple and severe##pidorpidor## self-injurious behaviours in a 45-year-old##pidorpidor## institutionalized man with intellectual disability##pidorpidor## and psychotic illness. Community involvement and##pidorpidor## eventual community living, with the increased##pidorpidor## control over his circumstances this gave him, was##pidorpidor## associated with positive behavioural change in the##pidorpidor## individual studied.
##pidorpidor## ##pidorpidor## Roeher Institute (1994). Violence##pidorpidor## and People with Disabilities: A Review of the##pidorpidor## Literature.
##pidorpidor## ##pidorpidor## Among the systemic changes recommended to##pidorpidor## reduce the likelihood of abuse of people with##pidorpidor## disabilities are "support services that are more##pidorpidor## widely available, affordable, portable and subject##pidorpidor## to consumer control so that people with##pidorpidor## disabilities are not required to participate in##pidorpidor## delivery sites that may involve risks (e.g.,##pidorpidor## sheltered workshops, group homes, special care##pidorpidor## homes, multi-service institutions) and the##pidorpidor## "deinstitutionalization of people with disabilities##pidorpidor## and integration into the community".
##pidorpidor## ##pidorpidor## Joseph Rowntree Foundation (1998). Supported##pidorpidor## living and supported employment: opening up##pidorpidor## opportunities to people with learning##pidorpidor## difficulties. Ref 728.
##pidorpidor## ##pidorpidor## This article examines barriers to##pidorpidor## inclusion of people with learning disabilities in##pidorpidor## the community and suggests solutions. It##pidorpidor## recommends, among other things, "A clear national##pidorpidor## strategy and framework for specialist services to##pidorpidor## enable more people with learning difficulties to##pidorpidor## access supported living and employment options."
##pidorpidor## ##pidorpidor## Online articles, manuals and reports:
##pidorpidor## ##pidorpidor## Queensland Disability Housing Coalition (2005).##pidorpidor## A##pidorpidor## home of my own: right, rhetoric or reality?
##pidorpidor## ##pidorpidor## Croft D (2006).##pidorpidor## Innovation in the provision of accommodation support##pidorpidor## services for Western Australians with a disability. A##pidorpidor## Discussion Paper. Accommodation Think Tank ACROD##pidorpidor## WA.
##pidorpidor## ##pidorpidor## Connections for Information and Resources on##pidorpidor## Community Living (CIRCL) (2000). Developing##pidorpidor## Supported Living Services: A Guide to Essentials for##pidorpidor## Service Agencies and Regional Centers.
##pidorpidor## ##pidorpidor## This is a comprehensive manual for those##pidorpidor## seeking to set up a Supported Living Agency and##pidorpidor## ensure good practice.
##pidorpidor## ##pidorpidor## Allen Shea Associates. Supported##pidorpidor## Living Service Quality Review Process.##pidorpidor## Self-Assessment for SLS Service Providers.
##pidorpidor## ##pidorpidor## This is an evaluation checklist for##pidorpidor## service providers to check whether they are##pidorpidor## implementing good practice in supported living##pidorpidor## services.
##pidorpidor## ##pidorpidor## National Resource Center on Supported Living and##pidorpidor## Choice (2004). "Community##pidorpidor## for all" Tool kit resources for supporting community##pidorpidor## living. Syracuse University
##pidorpidor## ##pidorpidor## A full copy of the 405 page 'toolkit'##pidorpidor## (15Mb) can be downloaded from this site.
##pidorpidor## ##pidorpidor## Hulgin K, Shoultz B, Walker P & Drake S (1996).##pidorpidor## Innovative##pidorpidor## practices in supported living: an overview of##pidorpidor## organizations, issues, and resource materials.##pidorpidor## Center on Human Policy Syracuse University.
##pidorpidor## ##pidorpidor## Describes innovative agencies around the##pidorpidor## USA and addresses a number of issues that are##pidorpidor## important to continue to address in the effort to##pidorpidor## develop supported living services.
##pidorpidor## ##pidorpidor## O'Brien J (1995). The##pidorpidor## Transition to Supported Living. Realizing the Moment##pidorpidor## and Moving On. Report of an Evaluation of##pidorpidor## Supported Living Services at Jay Nolan Community##pidorpidor## Services.
##pidorpidor## ##pidorpidor## O'Brien J & C with Brost M (1999). Guiding##pidorpidor## People Home. The Role of Wisconsin's Supported Housing##pidorpidor## Specialist.
##pidorpidor## ##pidorpidor## Cyr B Full##pidorpidor## Inclusion or Full Disillusionment: Including People##pidorpidor## With Disabilities In Our Communities, University##pidorpidor## of Maine, Machias.
##pidorpidor## ##pidorpidor## Taylor S J Chapter 15. 'Supporting Adults to Live##pidorpidor## in the Community: Beyond the Continuum' in Pueschel S.##pidorpidor## M. (Ed.) Adults with Down Syndrome. Paul H##pidorpidor## Brookes. Baltimore.
##pidorpidor## ##pidorpidor## Useful websites
##pidorpidor## ##pidorpidor## Family##pidorpidor## Advocacy: Inclusion Collection - Family Advocacy##pidorpidor## houses##pidorpidor## a range of articles for personal study on##pidorpidor## supported living and other subjects related to##pidorpidor## inclusive lives for people with disabilities.
##pidorpidor## ##pidorpidor## Community##pidorpidor## Resource Unit
##pidorpidor## ##pidorpidor## Kendrick##pidorpidor## Consulting: Michael Kendrick's website contains a##pidorpidor## large number of articles on person centred supports##pidorpidor## and service transformation.
##pidorpidor## ##pidorpidor## The##pidorpidor## Center for Human Policy, Law and Disability##pidorpidor## Studies: Has a page of Supported##pidorpidor## Living links
##pidorpidor## ##pidorpidor## Paradigm##pidorpidor## UK Articles
##pidorpidor## ##pidorpidor## Links##pidorpidor## to pages on supported living at Pardigm UK
##pidorpidor## ##pidorpidor## Connections##pidorpidor## for Information and Resources on Community Living##pidorpidor## (CIRCL)
##pidorpidor## ##pidorpidor## Inclusion##pidorpidor## Press