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Man descending rocks with the help of friendsNot waiting, beginning….

From years of using disability services we often get used to thinking we can't do anything to achieve flexible, person-centred supports ourselves.

We may get frustrated waiting for government to introduce the kinds of supports and funding we want.

If we wait until government funding and services seem 'right' to us, we will be waiting a long, long time.

There are many families who haven't waited.

Most good examples of supported living in Australia have been the result of people getting started, with or without funding, on what they want. What these families share is a clear, strong idea of people with disability being able to live where and how they want, with flexible, individualised support.

Woman speaking: "I think I have learnt as much from what didn't work as what did."

Man speaking: "Families should try to 'be ahead of the game'." Woman speaking: "Don't make the assumption that government or services will 'lead the way'. They won't."

 

This page includes:

~ stories of people who began with whatever resources they could use.
~ a list of ideas and links that might help you get started.

 

Stories

Story 1 - Planning for Mena

Margaret tells about the early planning that went into Mena moving into her own home. From the time Mena was quite young, her family, with the help of a support 'circle' has thought about how they could achieve work, relationships and a home for Mena. At 28, Mena has now lived in a home of her own, with support, for 9 years.
> Read more

Story 2 - David's home

David, now 43, acquired a brain injury 20 years ago. After attending a workshop and thinking about the material it presented about social roles, Brenda had a bright idea. "We'll build him a house", she decided. With very little funding, no knowledge about building and not much of an idea how they were going to achieve this outcome, they set out nevertheless. They received assistance in realising the dream from the Community Living Project and David now lives in his own mud brick house.
> Read more

 

Ideas

This is a collection of all kinds of ideas that might suit some people and not others. It is not a checklist of things to do.

  • Support Circles - A group of family, friends and allies could help you think about the life your family member wants. Some families have found they get great ideas, commitment and moral support from a circle of friends.

  • The Community Resource Unit's CRUcial times Newsletter had an issue on this in March 2007.
    (Also see Planning Tools)

  • Think about what kind of home the person would want; what kind of roles and connections the person would ideally enjoy in the community. Build a vision of the life they would want so you are clear about what you're working towards.

  • Help people understand supported living. Family and friends may never have heard about people being supported like this. Some ideas for getting your support network on the same track might include - sharing this website with them, talking to them about why you think this is the best option for your family member or getting them to come to seminars in which theses ideas are discussed. This site will be updated with details of coming events, but you can also contact advocacy organisations that run seminars. Some are listed here.

  • Think creatively about your community. Think in a detailed way about your family member's interests and skills. Who do you and others in your support network know in the community? What groups and activities, work or volunteering possibilities does the community offer? (Think about anything and everything from the local conservation volunteers to the musical society, from the local the church to the soccer club.)
    What are some potential starting points are to forge community connections for the person you're thinking about?
    You may find yourself starting very modestly with a few activities and connections may grow with time and effort.

  • Can you get help with domestic support or personal care through services like
    ~ Home Care Service of NSW
    ~ Attendant Care Program

  • Are you eligible for any help through new Commonwealth In-Home Support announced 28 June 2007?

  • Look at Dept of Housing website.
  • You might apply for public housing. Discuss your interest in community housing.

  • Go to meet your local Community Housing Association or look at community housing or cooperative housing ideas on the Community Housing NSW website

  • Can you rent a home or flat on the open market? Can you access rental assistance or subsidies to achieve this?

  • Do you know of other families in your city who want the same kind of thing? Could you set up some get-togethers to talk about what you want? Maybe sharing your dreams about what you want with other people thinking about similar things will help you. Homes West in Qld and the Community Living Project in SA are examples of agencies that actually began from groups of parents getting together with a shared vision. You can read about Homes West's history on its website.

  • Talk to family/friends. Is there an opportunity to use someone's 'spare' accommodation (in someone's holiday home or an opportunity to house sit while people are away) to set up a 'trial'?

  • Think about whether you have friends who might help form part of a volunteer dinner roster. (See Mena's story for what one family did.)

There is no 'quick fix'. Reading what others have done may give you some ideas, but the first steps you decide to take will depend on the person with a disability you are thinking about and what they want.

 

More Links:

Community Resource Unit, Queensland: www.cru.org.au

CRU states it aims to: Challenge ideas and practices which limit the lives of people with disabilities, and inspire and encourage individuals and organisations to pursue better lives for people with disabilities. The website provides a variety of resources which might assist families in pursuing supported living.
The CRUcial Times Newsletter 38, March 2007 was on Circles of Support: www.cru.org.au/crutimes/

Queensland Disability Housing Coalition (2005). A home of my own: right, rhetoric or reality? Considerations for housing and a sustainable future for people with disabilities. www.qdhc.org.au/docs/HomeOfMyOwn.pdf

This is a comprehensive resource that is designed for people with disabilities and their families. It describes in some detail the idea of supported living and will answer many common questions.

Family Advocacy: Inclusion Collection.

Family Advocacy houses a range of articles for personal study on supported living and other subjects related to inclusive lives for people with disabilities.

Research and Training Center on Community Living. Through Asking the Right Questions You Can Reach Your Destination - University of Minnesota rtc.umn.edu/questions/

A page of questions that might help individuals and families think about what they want.

Weatherow D (2003). From a Four-Bed 'Placement' to a New Life. www.communityworks.info/articles/4bed.htm

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